From twitter.

 

Estella Star@EstellaStar1

Lots of new followers. Can I please ask that you all watch and retweet this video about my little girl and SMA

Estella was a beautiful baby girl who passed away from Spinal Muscular Atrophy Type 1, aged 8 months.
This video was created to tell Estellas story.
Follow her on twitter http://www.twitter.com/estellastar1
Please sign the petition and campaign for screening.
http://epetitions.direct.gov.uk/petitions/25997

Find out more about her here;
http://www.bluebellwood.org.uk/estella
or here
http://www.smashsma.blogspot.com
or finally here
http://www.facebook.com/estellameansstar

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2 Responses to From twitter.

  1. Redneck Dixie Warrior says:

    My heart goes out to those parents and little girl. It is quite devastating to find out that one’s perfect Blessing from God has something that can’t be fixed and the time left is limited to show them all the love one can.
    I also have a child with a genetic anomaly…..Trisomy 21. The horror stories we were told when he was just 6 hours old ( before we even got to see him or hold him) were awful. I thank God everyday that none of those stories have come true for us!
    If anyone is interested….our friends have a website to help others with children of Trisomy 21. They do not have charity Status as of yet but if any can help them out by becoming a member…it would be appreciated.

    http://www.einsteinchallengedsociety.org

    May Peace be with the family of little Estella.

  2. upaces88 says:

    What a precious Angel. I cannot imagine the anguish and pain the parents went through.

    God has her now and her body is perfect again.

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